Got It!

Happy to report that Luke attended school for a full week this past week! He is doing great, still no symptoms - not that we expect any, but it goes back to that "every day is a gift" idea.

We have cleared a huge hurdle this past week with God's help of course. Dr. Grady and Pegi warned us about the battle we'd have in obtaining the necessary medicine for Luke. "Wicked expensive and wicked hard to get" were the exact terms Dr. Grady used. After numerous phone calls to and from Humana insurance, Humana pharmacy, St. Louis, Ky Medicaid, etc.,

over the course of 5 days - in a matter of 45 minutes or so - the situation turned around and was completely resolved. Pegi, who was also working on the matter from St. Louis, was finally told by Humana the medicine could only be authorized, filled, and covered if it was done through a certain pharmacy. She called the number they gave her...and to make a long story short, (ha!) Luke's prescription ended up in the hands of our pharmacist friend who then took care of everything else for us. Even the Medicaid authorization came rolling in the next morning!

Just think of it: our nurse in St. Louis calling a certain pharmacy in Louisville, our certain friend is working that day - at that very time, and happens to be the certain one chosen to fill Luke's vital prescription. Beyond amazing...and humbling...to know that God had it all worked out without our help, it just had to be in His timing. Oh, and did I mention that I later learned a group of prayer warriors in Nashville (of whom we only know one person) were praying at that exact time about Luke's medication - and also since then, 2 other friends have shared the urge to pray about his medication, all around the same time? God is so good. Thanks to all of you prayer warriors on our behalf - many of whom we don't even know & may never even meet.

So, speaking of prayer - Monday, 8th of Feb., Karen will take Luke to Kosair to actually get his first dose of medication under supervision. There is potential for a drop in blood pressure with this medicine, (called Ravatio) so he will be monitored for an hour or two after taking his first dose. If all goes well, he will take 3 doses each day from now on. Please pray that he will tolerate the medicine

with no side effects.

We will return to St. Louis Childrens the last week of April for tests, and a visit with Dr. Grady. Please pray the medicine will be so effective between now and then that his pressures will return to normal in his lungs.

We are reminded of what Ralph Waldo Emerson said - this hangs framed in our home: "Do not go where the path may lead, go instead where there is no path and leave a trail."

We will post tomorrow night to let you know how the medicine works out!

Blessings to everyone!